Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD) is a muscle degenerating condition that affects 1 in 3500 Australian children - 99% boys. Young boys generally show symptoms before the age of five, by the age of twelve muscle tissue has deteriorated so much they are permanently wheelchair bound.
This condition spreads from the legs to the arms and neck – eventually leaving the entire body paralysed.
Most children with DMD will not live past their late teens.LEARN MORE ABOUT DMD
HELP SAVE OUR SONS
FUND CLINICAL TRIALS
Australia does not have a current policy for Duchenne. This means that money for research, trials, and supporting families coping with rare diseases is all raised by charities, or paid for by the families themselves.
Save Our Sons and Duchenne Foundation have nearly raised $1.75m, half the money needed to fund clinical trials that could put a stop to Duchenne Muscular Dystrophy. The petition is a call for the Australian Government to step up and match these funds.
A huge thank you is due to all those who have shown their support. Since the launch of the campaign, The Most Powerful Arm has signed over 32,000 names to the petition.
The petition was only asking two things of the Australian Government:
Meet Jacob Lancaster.
He's 19 years old and lives in Sydney.
Born a happy, healthy baby boy in 1993, Jacob quickly grew into an adventurous young toddler who showed early signs of cheek and intelligence. But as Jacob began to develop into a young boy, he also started showing signs of something else.
On his 5th birthday he was diagnosed with DMD, and everything changed.
The muscles in his legs were the first to weaken, and by 9 he was permanently confined to a wheel chair.
At the age of 12 Jacob’s back collapsed, which resulted in major surgery and dramatically affected the use of his arms.
Jacob’s lungs, heart and throat muscles have all weakened immensely during his teenage years – he now relies on an assisted breathing machine for 10hrs a day.
Though Jacob is well aware of what lies ahead, and his health makes it difficult to keep in touch with friends, he is still determined to do what makes him happy.
Just recently he went busking in Cronulla to raise money for Save Our Sons.
More than anything Jacob wants to put a stop to this condition.
WHY WE INVENTED THE MOST POWERFUL ARM EVER
The arm not only gave children with Duchenne Muscular Dystrophy the power to write again – it gave Australians the power to save them.
Its handwriting is based on that of Jacob Lancaster – a 19 year-old from Sydney who has lost the ability to write due to DMD.
By allowing the Facebook App to do its thing, Australians were simply giving the arm their name and email address in support of helping Jacob, and children with DMD.
We'd like to thank Fuji Xerox for donating their time and resources in building the paper roller, to help make this possible.